1 Universidade de Santa Cruz do Sul (Unisc), Departamento de Biologia e Farmácia, Santa Cruz do Sul, RS, Brazil; Pontifícia Universidade Católica do Rio Grande do Sul (PUC-RS), Programa de Pós-Graduação em Pediatria e Saúde da Criança, Porto Alegre, RS, Brazil.
2 Pontifícia Universidade Católica do Rio Grande do Sul (PUC-RS), Programa de Pós-Graduação em Pediatria e Saúde da Criança, Porto Alegre, RS, Brazil; Prefeitura de Canela, Canela, RS, Brazil.
3 Universidade Federal de Ciências da Saúde de Porto Alegre (UFCSPA), Departamento de Pediatria, Porto Alegre, RS, Brazil; Hospital da Criança Santo Antônio, Serviço de Pneumologia Pediátrica, Porto Alegre, RS, Brazil.
4 Universidade Federal do Rio Grande do Sul (UFRGS), Programa de Pós-Graduação em Epidemiologia, Porto Alegre, RS, Brazil.
5 Pontifícia Universidade Católica do Rio Grande do Sul (PUC-RS), Escola de Medicina, Porto Alegre, RS, Brazil.
6 Pontifícia Universidade Católica do Rio Grande do Sul (PUC-RS), Programa de Pós-Graduação em Pediatria e Saúde da Criança, Porto Alegre, RS, Brazil.
7 Universidade Federal do Rio Grande do Sul (UFRGS), Programa de Pós-Graduação em Cardiologia e Ciências Cardiovasculares, Porto Alegre, RS, Brazil.
8 Concordia University, Department of Psychology, Montreal, Canada; University of Montreal, CHU Sainte-Justine & Department of Psychiatry, Montreal, Canada.
9 Universidade do Vale do Taquari (UNIVATES), Centro de Ciências Médicas, Lajeado, RS, Brazil; Pontifícia Universidade Católica do Rio Grande do Sul (PUC-RS), Programa de Pós-graduação em Medicina e Ciências da Saúde, Porto Alegre, RS, Brazil.
10 Pontifícia Universidade Católica do Rio Grande do Sul (PUC-RS), Programa de Pós-Graduação em Pediatria e Saúde da Criança, Porto Alegre, RS, Brazil; Universidade Federal do Rio Grande do Sul (UFRGS), Programa de Pós-Graduação em Epidemiologia, Porto Alegre, RS, Brazil. Electronic address: rita.mattiello@pucrs.br.

Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy.

J Pediatr (Rio J). 2018 Jul 04;:

Authors: Sarria EE, Mundstock E, Mocelin HT, Fischer GB, Torres RR, Garbin JGM, Leal LF, de F Arend MHR, Stein R, Booij L, de Araújo RMF, Mattiello R

Abstract

OBJECTIVE: To assess the level of agreement in health-related quality of life between children with Post-infectious Bronchiolitis Obliterans and their parent (so-called proxy).

METHODS: Participants aged between 8and 17 years who had been previously diagnosed with Post-infectious Bronchiolitis Obliterans were regularly followed up at a pediatric pulmonology outpatient clinic. Parents or legal guardians (caregivers) of these patients were also recruited for the study. A validated and age-appropriate version of the Pediatric Quality of Life Inventory 4.0 was used for the assessment of health-related quality of life. Caregivers completed the corresponding proxy versions of the questionnaire. The correlation between self and proxy reports of health-related quality of life was determined by intra-class correlation coefficient and dependent t-tests.

RESULTS: The majority of participants were males (79.4%), and the average age was 11.8 years. Intra-class correlations between each of the Pediatric Quality of Life Inventory 4.0 domains and the total score were all lower than 0.6, with a range between 0.267 (poor) and 0.530 (fair). When the means of each domain and the total score of the questionnaires were compared, caregivers were observed to have a significantly lower health-related quality of life score than children, with the exception of the social domain in which the difference was not significant. However, the differences in score exceeded the critical threshold difference of four points in all other domains.

CONCLUSION: Proxies of children and adolescents with Post-infectious Bronchiolitis Obliterans appear to consistently perceive their children as having lower health-related quality of life than how the patients perceive themselves.

PMID: 31327498 [PubMed - as supplied by publisher]