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Patient and family engagement in patient care and research in Canadian intensive care units: a national survey

Authors: Burns KEAMcDonald EDebigaré SZamir NVasquez MPiche-Ayotte MOczkowski S


Affiliations

1 Interdepartmental Division of Critical Care, University of Toronto, Toronto, ON, Canada. Karen.Burns@unityhealth.to.
2 Unity Health Toronto - St. Michael's Hospital, Li Ka Shing Knowledge Institute, Toronto, ON, M5B 1W8, Canada. Karen.Burns@unityhealth.to.
3 Department of Health Research Methods, Impact and Evaluation, McMaster University, Hamilton, ON, Canada. Karen.Burns@unityhealth.to.
4 St. Joseph's Hospital, Hamilton, ON, Canada.
5 Central Quebec School Board, Québec City, QC, Canada.
6 Interdepartmental Division of Critical Care, University of Toronto, Toronto, ON, Canada.
7 Juravinski Hospital, Hamilton Health Sciences, Hamilton, ON, Canada.
8 Department of Biology, Concordia University, Montreal, QC, Canada.
9 Department of Health Research Methods, Impact and Evaluation, McMaster University, Hamilton, ON, Canada.

Description

Purpose: While patient and family engagement may improve clinical care and research, current practices for engagement in Canadian intensive care units (ICUs) are unknown.

Methods: We developed and administered a cross-sectional questionnaire to ICU leaders of current engagement practices, facilitators, and barriers to engagement, and whether engagement was a priority, using to an ordinal Likert scale from 1 to 10.

Results: The response rate was 53.4% (124/232). Respondents were from 11 provinces and territories, mainly from medical surgical ICUs (76%) and community hospitals (70%). Engagement in patient care included bedside care (84%) and bedside rounds (66%), presence during procedures/crises (65%), and survey completion (77%). Research engagement included ethics committees (36%), protocol review (31%), and knowledge translation (30%). Facilitators of engagement in patient care included family meetings (87%), open visitation policies (81%), and engagement as an institutional priority (74%). Support from departmental (43%) and hospital (33%) leadership was facilitator of research engagement. Time was the main barrier to engagement in any capacity. Engagement was a higher priority in patient care vs research (median [interquartile range], 8 [7-9] vs 3 [1-7]; P < 0.001) and in pediatric vs adult ICUs (10 [9-10] vs 8 [7-9]; P = 0.003). Research engagement was significantly higher in academic vs other ICUs (7 [5-8] vs 2 [1-4]; P < 0.001), and pediatric vs adult ICUs (7 [5-8] vs 3 [1-6]; P = 0.01).

Conclusions: Organizational strategies and institutional support were key facilitators of engagement. Engagement in patient care was a higher priority than engagement in research.


Keywords: clinical careengagementresearchsurvey


Links

PubMed: https://pubmed.ncbi.nlm.nih.gov/36344874/

DOI: 10.1007/s12630-022-02342-w