PERFORM Publications

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Title		Authors	PubMed ID
1	Aquatic therapy compared to standard care for chronic low back pain: a randomized controlled trial	Vaillancourt N; Montpetit C; Rosenstein B; Fortin M;	41527881 SOH
2	Preexisting Mental Health Disorders Are Associated With Acute Clinical Presentation and Longitudinal Recovery Trajectories in Adolescents With Concussion	Iuliano SG; Gagnon IJ; Iverson GL; Cook NE; Zemek R; Teel EF;	41505351 SOH
3	Aquatic exercise versus standard care on paraspinal muscle morphology and function in chronic low back pain patients: a randomized controlled trial	Rosenstein B; Montpetit C; Vaillancourt N; Dover G; Weiss C; Papula LA; Melek A; Fortin M;	40328824 SOH
4	Mechanism of Injury and Clinical Recovery Outcomes Following Pediatric Concussion	Gudymenko A; Iuliano SG; Gagnon IJ; Iverson GL; Cook NE; Zemek R; Teel EF;	40244878 SOH
5	Who gains the most quality-of-life benefits from metabolic and bariatric surgery: findings from the prospective REBORN cohort study	Yousefi R; Ben-Porat T; Marques Vieira A; Lavoie KL; Bacon SL;	39304457 HKAP
6	The BDNF Val66Met polymorphism and health-related quality of life in youth with obesity	Goldfield GS; Cameron JD; Sigal RJ; Kenny GP; Prud' homme D; Ngu M; Alberga AS; Doucette S; Goldfield DB; Tulloch H; Thai H; Simas KR; Walsh J;	38997217 HKAP
7	Measuring what matters to older persons for active living: part I content development for the OPAL measure across four countries	Mayo NE; Auais M; Barclay R; Branin J; Dawes H; Korfage IJ; Sawchuk K; Tal E; White CL; Ayoubi Z; Chowdhury F; Henderson J; Mansoubi M; Mate KKV; Nadea L; Rodriguez S; Kuspinar A;	38967870 BIOLOGY
8	Effect of aquatic exercise versus standard care on paraspinal and gluteal muscles morphology in individuals with chronic low back pain: a randomized controlled trial protocol	Rosenstein B; Montpetit C; Vaillancourt N; Dover G; Khalini-Mahani N; Weiss C; Papula LA; Melek A; Fortin M;	38110922 SOH
9	Cancer symptom burden negatively affects health-related quality of life in patients undergoing prehabilitation prior to liver resection: results from a 12-week randomized controlled trial	Kasvis P; Vigano A; Bui T; Carli F; Kilgour R;	37690126 PERFORM
10	Benefits of a 3-month cycle of weekly virtual museum tours in community dwelling older adults: Results of a randomized controlled trial	Beauchet O; Matskiv J; Galery K; Goossens L; Lafontaine C; Sawchuk K;	36052331 CONCORDIA
11	Empirically Derived Profiles of Health-Related Quality of Life in Youth and Young Adults with Sickle Cell Disease.	Keenan ME, Loew M, Berlin KS, Hodges J, Alberts NM, Hankins JS, Porter JS	33249456 PSYCHOLOGY
12	Effects of Dance/Movement Training vs. Aerobic Exercise Training on cognition, physical fitness and quality of life in older adults: A randomized controlled trial.	Esmail A, Vrinceanu T, Lussier M, Predovan D, Berryman N, Houle J, Karelis A, Grenier S, Minh Vu TT, Villalpando JM, Bherer L	31987547 PERFORM
13	Life after breast cancer: moving on, sitting down or standing still? A prospective study of Canadian breast cancer survivors.	Sabiston CM, Wrosch C, Fong AJ, Brunet J, Gaudreau P, O'Loughlin J, Meterissian S	30056387 PSYCHOLOGY
14	Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy.	Sarria EE, Mundstock E, Mocelin HT, Fischer GB, Torres RR, Garbin JGM, Leal LF, de F Arend MHR, Stein R, Booij L, de Araújo RMF, Mattiello R	31327498 PSYCHOLOGY

Title:	Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy.
Authors:	Sarria EE, Mundstock E, Mocelin HT, Fischer GB, Torres RR, Garbin JGM, Leal LF, de F Arend MHR, Stein R, Booij L, de Araújo RMF, Mattiello R
Link:	https://www.ncbi.nlm.nih.gov/pubmed/31327498?dopt=Abstract
DOI:	10.1016/j.jped.2018.05.014
Publication:	Jornal de pediatria
Keywords:	Bronchiolitis obliterans; Bronquiolite obliterante; Children; Crianç; as; Health-related quality of life; Qualidade de vida relacionada à; saú; de;
PMID:	31327498	Category:	J Pediatr (Rio J)	Date Added:	2019-08-07
Dept Affiliation:	PSYCHOLOGY 1 Universidade de Santa Cruz do Sul (Unisc), Departamento de Biologia e Farmácia, Santa Cruz do Sul, RS, Brazil; Pontifícia Universidade Católica do Rio Grande do Sul (PUC-RS), Programa de Pós-Graduação em Pediatria e Saúde da Criança, Porto Alegre, RS, Brazil. 2 Pontifícia Universidade Católica do Rio Grande do Sul (PUC-RS), Programa de Pós-Graduação em Pediatria e Saúde da Criança, Porto Alegre, RS, Brazil; Prefeitura de Canela, Canela, RS, Brazil. 3 Universidade Federal de Ciências da Saúde de Porto Alegre (UFCSPA), Departamento de Pediatria, Porto Alegre, RS, Brazil; Hospital da Criança Santo Antônio, Serviço de Pneumologia Pediátrica, Porto Alegre, RS, Brazil. 4 Universidade Federal do Rio Grande do Sul (UFRGS), Programa de Pós-Graduação em Epidemiologia, Porto Alegre, RS, Brazil. 5 Pontifícia Universidade Católica do Rio Grande do Sul (PUC-RS), Escola de Medicina, Porto Alegre, RS, Brazil. 6 Pontifícia Universidade Católica do Rio Grande do Sul (PUC-RS), Programa de Pós-Graduação em Pediatria e Saúde da Criança, Porto Alegre, RS, Brazil. 7 Universidade Federal do Rio Grande do Sul (UFRGS), Programa de Pós-Graduação em Cardiologia e Ciências Cardiovasculares, Porto Alegre, RS, Brazil. 8 Concordia University, Department of Psychology, Montreal, Canada; University of Montreal, CHU Sainte-Justine & Department of Psychiatry, Montreal, Canada. 9 Universidade do Vale do Taquari (UNIVATES), Centro de Ciências Médicas, Lajeado, RS, Brazil; Pontifícia Universidade Católica do Rio Grande do Sul (PUC-RS), Programa de Pós-graduação em Medicina e Ciências da Saúde, Porto Alegre, RS, Brazil. 10 Pontifícia Universidade Católica do Rio Grande do Sul (PUC-RS), Programa de Pós-Graduação em Pediatria e Saúde da Criança, Porto Alegre, RS, Brazil; Universidade Federal do Rio Grande do Sul (UFRGS), Programa de Pós-Graduação em Epidemiologia, Porto Alegre, RS, Brazil. Electronic address: rita.mattiello@pucrs.br.

Description:

Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy.

J Pediatr (Rio J). 2018 Jul 04;:

Authors: Sarria EE, Mundstock E, Mocelin HT, Fischer GB, Torres RR, Garbin JGM, Leal LF, de F Arend MHR, Stein R, Booij L, de Araújo RMF, Mattiello R

Abstract

OBJECTIVE: To assess the level of agreement in health-related quality of life between children with Post-infectious Bronchiolitis Obliterans and their parent (so-called proxy).

METHODS: Participants aged between 8and 17 years who had been previously diagnosed with Post-infectious Bronchiolitis Obliterans were regularly followed up at a pediatric pulmonology outpatient clinic. Parents or legal guardians (caregivers) of these patients were also recruited for the study. A validated and age-appropriate version of the Pediatric Quality of Life Inventory 4.0 was used for the assessment of health-related quality of life. Caregivers completed the corresponding proxy versions of the questionnaire. The correlation between self and proxy reports of health-related quality of life was determined by intra-class correlation coefficient and dependent t-tests.

RESULTS: The majority of participants were males (79.4%), and the average age was 11.8 years. Intra-class correlations between each of the Pediatric Quality of Life Inventory 4.0 domains and the total score were all lower than 0.6, with a range between 0.267 (poor) and 0.530 (fair). When the means of each domain and the total score of the questionnaires were compared, caregivers were observed to have a significantly lower health-related quality of life score than children, with the exception of the social domain in which the difference was not significant. However, the differences in score exceeded the critical threshold difference of four points in all other domains.

CONCLUSION: Proxies of children and adolescents with Post-infectious Bronchiolitis Obliterans appear to consistently perceive their children as having lower health-related quality of life than how the patients perceive themselves.

PMID: 31327498 [PubMed - as supplied by publisher]

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