PERFORM Publications

Keyword search (4,164 papers available)

Title		Authors	PubMed ID
1	Understanding school-based rehabilitation services through the lived experiences of children and youth with disabilities: a meta-aggregative review	Brushett A; Seguin K; Wong L; McCarry-Taillefer C; Rosenbaum P; Packham T; Campbell W;	41835425 CONCORDIA
2	Searching for balance: The effects of dance training on the postural stability of individuals with intellectual disability	DiPasquale S; Roberts M;	39818618 HKAP
3	Comparing assessment methods of low back pain related disability in student circus artists: A cross-sectional study	Rossini B; Anstruther M; Fortin M;	38848166 SOH
4	Health and Stress Management and Mental-health Disability Claims	Marchand A; Haines VY; Harvey S; Dextras-Gauthier J; Durand P;	26644043 JMSB
5	Primates and disability: Behavioral flexibility and implications for resilience to environmental change	Stewart BM; Joyce MM; Creeggan J; Eccles S; Gerwing MG; Turner SE;	38050800 CONCORDIA
6	System Approach for Characterizing and Evaluating Factors for Occupational Health Impacts Due to Nonfatal Injuries and Illnesses for the Use in Life Cycle Assessment	Huang Z; Kijko G; Scanlon K; Lloyd S; Henderson A; Fantke P; Jolliet O; Li S;	37490771 ENCS
7	Spaced Apart: Autoethnographies of Access Throughout the COVID 19 Pandemic	Dokumaci A; Bessette-Viens R; Goberdhan N; Lucas S; Mazowita A; Stainton J;	37461398 CONCORDIA
8	Mothers of disabled infants had higher cortisol levels in a free-ranging group of Japanese macaques (Macaca fuscata)	Turner SE; Fedigan LM; Joyce MM; Matthews HD; Moriarity RJ; Nobuhara H; Nobuhara T; Stewart BM; Shimizu K;	37189289 CONCORDIA
9	Pan-Canadian caregiver experiences in accessing government disability programs: A mixed methods study	Finlay B; Wittevrongel K; Materula D; Hébert ML; O' Grady K; Lach LM; Nicholas D; Zwicker JD;	36621140 CONCORDIA
10	Longitudinal Associations Between Relationship Quality and Depression Among Youth with Intellectual Disabilities: A Latent Change Perspective	Dubé C; Morin AJS; Olivier E; Tóth-Király I; Tracey D; Craven RG; Maïano C;	36436145 PSYCHOLOGY
11	Social Interaction Profiles Among Youth with Intellectual Disabilities: Associations with Indicators of Psychosocial Adjustment	Dubé C; Morin AJS; Tóth-Király I; Olivier E; Tracey D; McCune VS; Craven RG; Maïano C;	36342629 PSYCHOLOGY
12	Patient Outcomes After Treatment by Athletic Therapy Students	Lebel FB; DeMont R; Eberman LE; Dover GC;	35439310 HKAP
13	Validation of an Adapted Version of the Glasgow Anxiety Scale for People with Intellectual Disabilities (GAS-ID)	Maïano C; Morin AJS; Gagnon C; Olivier E; Tracey D; Craven RG; Bouchard S;	35138559 PSYCHOLOGY
14	Validation of a Revised Version of the Center for Epidemiologic Depression Scale for Youth with Intellectual Disabilities (CESD-ID-R)	Olivier E; Lacombe C; Morin AJS; Houle SA; Gagnon C; Tracey D; Craven RG; Maïano C;	34716523 PSYCHOLOGY
15	A psychometric validation of the motives for physical activity measure for youth with intellectual disabilities (MPAM-ID)	Maïano C; Morin AJS; Tracey D; Gagnon C; Smodis McCune V; Craven RG;	34528859 PSYCHOLOGY
16	Development and Validation of a Multi-informant Measure of Social Behaviors for Youth with Intellectual Disabilities	Olivier E; Morin AJS; Tracey D; Verma N; Dubé C; Gagnon C; Craven RG; Maïano C;	34255229 PSYCHOLOGY
17	Toward a Comprehensive Assessment of Relationships with Teachers and Parents for Youth with Intellectual Disabilities	Dubé C; Olivier E; Morin AJS; Tracey D; Craven RG; Maïano C;	34185237 PSYCHOLOGY
18	Integrative Dance for Adults with Down Syndrome: Effects on Postural Stability.	Dipasquale S, Canter B, Roberts M	33042366 HKAP
19	The Effectiveness of Dance Therapy as an Adjunct to Rehabilitation of Adults With a Physical Disability.	Swaine B, Poncet F, Lachance B, Proulx-Goulet C, Bergeron V, Brousse É, Lamoureux J, McKinley P	32982831 PSYCHOLOGY
20	Atrx Deletion in Neurons Leads to Sexually Dimorphic Dysregulation of miR-137 and Spatial Learning and Memory Deficits.	Tamming RJ, Dumeaux V, Jiang Y, Shafiq S, Langlois L, Ellegood J, Qiu LR, Lerch JP, Bérubé NG	32610139 PERFORM
21	Deficiencies in vesicular transport mediated by TRAPPC4 are associated with severe syndromic intellectual disability.	Van Bergen NJ, Guo Y, Al-Deri N, Lipatova Z, Stanga D, Zhao S, Murtazina R, Gyurkovska V, Pehlivan D, Mitani T, Gezdirici A, Antony J, Collins F, Willis MJH, Coban Akdemir ZH, Liu P, Punetha J, Hunter JV, Jhangiani SN, Fatih JM, Rosenfeld JA, Posey JE, Gibbs RA, Karaca E, Massey S, Ranasinghe TG, Sleiman P, Troedson C, Lupski JR, Sacher M, Segev N, Hakonarson H, Christodoulou J	31794024 BIOLOGY
22	Precarity and Aging: A Scoping Review.	Grenier A, Hatzifilalithis S, Laliberte-Rudman D, Kobayashi K, Marier P, Phillipson C	31675418 CONCORDIA

Title:	Pan-Canadian caregiver experiences in accessing government disability programs: A mixed methods study
Authors:	Finlay B, Wittevrongel K, Materula D, Hébert ML, O', Grady K, Lach LM, Nicholas D, Zwicker JD
Link:	https://pubmed.ncbi.nlm.nih.gov/36621140/
DOI:	10.1016/j.ridd.2022.104420
Publication:	Research in developmental disabilities
Keywords:	Canada; Caregivers; Disability programs; Mixed methods; Neurodevelopmental disability; Policy;
PMID:	36621140	Category:	Date Added:	2023-01-09
Dept Affiliation:	CONCORDIA 1 School of Public Policy, University of Calgary, Downtown Campus (5th floor), 906 8th Ave SW, Calgary, AB T2P 1H, Canada. Electronic address: brittany.finlay1@ucalgary.ca. 2 School of Public Policy, University of Calgary, Downtown Campus (5th floor), 906 8th Ave SW, Calgary, AB T2P 1H, Canada. Electronic address: krystle.wittevrongel@ucalgary.ca. 3 School of Public Policy, University of Calgary, Downtown Campus (5th floor), 906 8th Ave SW, Calgary, AB T2P 1H, Canada. Electronic address: dercia.materula@ucalgary.ca. 4 School of Public Policy, University of Calgary, Downtown Campus (5th floor), 906 8th Ave SW, Calgary, AB T2P 1H, Canada; Faculty of Social Work, University of Calgary, Canada Central and Northern Alberta Region, 3-250, 10230 Jasper Avenue, Edmonton T5J 4P6, AB, Canada. Electronic address: mlheber1@ualberta.ca. 5 Simone de Beauvoir Institute, Concordia University, ER building, 2155 Guy St., 6th floor, Montréal

Description:

Background: At present, little is known about the factors that contribute to the relatively low uptake of government-funded disability programs in Canada.

Aim: Understand how parents/caregivers of Canadian youth with neurodevelopmental disability (NDD) experience the process of applying for and accessing disability programs.

Methods and procedures: This mixed methods sequential explanatory study utilized two phases: an online survey (quantitative), followed by semi-structured interviews (qualitative). The quantitative phase gathered sociodemographic information and preliminary information about participant experiences applying for and accessing programs. The qualitative phase provided greater depth by asking participants to describe barriers and facilitators to program access.

Outcomes and results: 499 participants completed the online survey and 81 participants completed an interview. Analysis of survey data revealed that many participants are not accessing disability programs and experience difficulty when applying. Regression analyses revealed that factors relating to the process of applying and applicant/family attributes are significantly associated with program access. Inductive thematic analysis of interview data revealed four barriers and three facilitators to access. Integration of findings provided an overview of the multi-faceted journey to program access.

Conclusions and implications: The results of this study highlight policy changes that are needed to ensure disability programs adequately support Canadian families.

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