Keyword search (4,163 papers available)

"Porter JS" Authored Publications:

Title Authors PubMed ID
1 A multilevel mHealth intervention boosts adherence to hydroxyurea in individuals with sickle cell disease Hankins JS; Brambilla D; Potter MB; Kutlar A; Gibson RW; King AA; Baumann AA; Melvin CL; Gordeuk VR; Hsu LL; Nwosu C; Porter JS; Alberts NM; Badawy SM; Simon J; Glassberg J; Lottenberg R; DiMartino L; Jacobs S; Fernandez ME; Bosworth H; Klesges LM; Shah N; 37738155
CONCORDIA
2 Provider prescription of hydroxyurea in youth and adults with sickle cell disease: A review of prescription barriers and facilitators Pizzo A; Porter JS; Carroll Y; Burcheri A; Smeltzer MP; Beestrum M; Nwosu C; Badawy SM; Hankins JS; Klesges LM; Alberts NM; 37691131
PSYCHOLOGY
3 Empirically Derived Profiles of Health-Related Quality of Life in Youth and Young Adults with Sickle Cell Disease. Keenan ME, Loew M, Berlin KS, Hodges J, Alberts NM, Hankins JS, Porter JS 33249456
PSYCHOLOGY

 

Title:Empirically Derived Profiles of Health-Related Quality of Life in Youth and Young Adults with Sickle Cell Disease.
Authors:Keenan ME,  Loew M,  Berlin KS,  Hodges J,  Alberts NM,  Hankins JS,  Porter JS
Link:https://www.ncbi.nlm.nih.gov/pubmed/33249456
DOI:10.1093/jpepsy/jsaa104
Publication:Journal of pediatric psychology
Keywords:chronic illness;  quality of life;  sickle cell disease;  statistical approach; 
PMID:33249456 Category:J Pediatr Psychol Date Added:2020-11-30
Dept Affiliation: PSYCHOLOGY
1 Department of Psychology, St. Jude Children's Research Hospital, Memphis, TN.
2 Department of Psychology, The University of Memphis, Memphis, TN.
3 Department of Hematology, St. Jude Children's Research Hospital, Memphis, TN.
4 Department of Psychology, Concordia University, Montreal, Canada.

Description:

Empirically Derived Profiles of Health-Related Quality of Life in Youth and Young Adults with Sickle Cell Disease.

J Pediatr Psychol. 2020 Nov 29; :

Authors: Keenan ME, Loew M, Berlin KS, Hodges J, Alberts NM, Hankins JS, Porter JS

Abstract

OBJECTIVE: Determining how the health-related quality of life (HRQOL) is impacted by living with Sickle Cell Disease (SCD) can inform psychosocial interventions. The purpose of the present study is to determine if demographic and treatment variables predict membership into empirically derived subgroups of HRQOL among youth and young adults with SCD.

METHODS: Three hundred and seven youth and young adults with SCD (mean 17.63?years ± 3.74?years, 50.5% female) completed the Pediatric Quality of Life InventoryTM Sickle Cell Disease Module. Latent profile analysis examined subgroups/classes of HRQOL and relationships with demographic and treatment variables.

RESULTS: Three distinct classes emerged: High HRQOL (34% of the sample), Moderate HRQOL (44% of the sample), and Low HRQOL (22% of the sample). Being female was associated with increased odds of being in the moderate or low groups. Living with more severe SCD (genotypes HbSS and HbSß0 thalassemia) was associated with increased odds of being in the Low HRQOL group. Treatment with chronic red blood cell transfusion therapy was associated with increased odds of being in the High HRQOL group. Older age predicted a small increase in the odds of being in the Low versus High HRQOL group.

CONCLUSIONS: The present study adds to the literature on HRQOL in SCD by exploring person-centered, empirically derived groups of HRQOL. Identification of demographic and treatment factors that predict membership into those groups within a large sample assists in tailoring needed psychosocial interventions for youth with SCD.

PMID: 33249456 [PubMed - as supplied by publisher]




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