| Keyword search (4,164 papers available) | ![]() |
"Nathan PC" Authored Publications:
| Title | Authors | PubMed ID | |
|---|---|---|---|
| 1 | Parents Experiences and Clinicians Perceptions of Managing Cancer Pain in Young Children at Home | Jibb LA; Hashemi E; Sivaratnam S; Hildenbrand AK; Nathan PC; Chartrand J; Alberts NM; Masama T; Pease HG; Torres LB; Cortes HG; Zworth M; Kuczynski S; Fortier MA; | 41149458 PSYCHOLOGY |
| 2 | Prevalence and characteristics of neuropathic pain in adolescent survivors of childhood cancer | Mesaroli G; Olaizola S; Nair A; Nishat F; Pizzo A; Nathan PC; Alberts NM; Stinson JN; | 40999274 PSYCHOLOGY |
| 3 | Intolerance of uncertainty, psychological symptoms, and pain in long-term childhood cancer survivors: a report from the Childhood Cancer Survivor Study | Alberts NM; Stratton KL; Leisenring WM; Pizzo A; Lamoureux É; Alschuler K; Flynn J; Krull KR; Jibb LA; Nathan PC; Olgin JE; Stinson JN; Armstrong GT; | 40699439 PSYCHOLOGY |
| 4 | Supporting parent capacity to manage pain in young children with cancer at home: Co-design and usability testing of the PainCaRe app | Jibb LA; Liu W; Stinson JN; Nathan PC; Chartrand J; Alberts NM; Hashemi E; Masama T; Pease HG; Torres LB; Cortes HG; Kuczynski S; Liu S; La H; Fortier MA; | 39473834 CONCORDIA |
| 5 | Fear of Cancer Recurrence in Adult Survivors of Childhood Cancer | Pizzo A; Leisenring WM; Stratton KL; Lamoureux É; Flynn JS; Alschuler K; Krull KR; Jibb LA; Nathan PC; Olgin JE; Stinson JN; Armstrong GT; Alberts NM; | 39361286 PSYCHOLOGY |
| 6 | Characterization of chronic pain, pain interference, and daily pain experiences in adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study | Alberts NM; Leisenring W; Whitton J; Stratton K; Jibb L; Flynn J; Pizzo A; Brinkman TM; Birnie K; Gibson TM; McDonald A; Ford J; Olgin JE; Nathan PC; Stinson JN; Armstrong GT; | 38981063 CONCORDIA |
| 7 | Parent and clinician perceptions and recommendations on a pediatric cancer pain management app: A qualitative co-design study | Jibb LA; Sivaratnam S; Hashemi E; Chu CH; Nathan PC; Chartrand J; Alberts NM; Masama T; Pease HG; Torres LB; Cortes HG; Zworth M; Kuczynski S; Fortier MA; | 38019890 PSYCHOLOGY |
| Title: | Parent and clinician perceptions and recommendations on a pediatric cancer pain management app: A qualitative co-design study | ||||
| Authors: | Jibb LA, Sivaratnam S, Hashemi E, Chu CH, Nathan PC, Chartrand J, Alberts NM, Masama T, Pease HG, Torres LB, Cortes HG, Zworth M, Kuczynski S, Fortier MA | ||||
| Link: | https://pubmed.ncbi.nlm.nih.gov/38019890/ | ||||
| DOI: | 10.1371/journal.pdig.0000169 | ||||
| Publication: | PLOS digital health | ||||
| Keywords: | |||||
| PMID: | 38019890 | Category: | Date Added: | 2023-11-29 | |
| Dept Affiliation: |
PSYCHOLOGY
1 Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Canada. 2 Child Health Evaluative Sciences, Hospital for Sick Children, Toronto, Canada. 3 Temerty Faculty of Medicine, University of Toronto, Toronto, Canada. 4 KITE-Toronto Rehabilitation Institute, University Health Network, Toronto, Canada. 5 Institute of Health Policy Management and Evaluation, University of Toronto, Toronto, Canada. 6 Division of Hematology/Oncology, Hospital for Sick Children, Toronto, Canada. 7 Faculty of Health Sciences, University of Ottawa, Ottawa, Canada. 8 Research Institute, Children's Hospital of Eastern Ontario, Ottawa, Canada. 9 Department of Psychology, Concordia University, Montreal, Canada. 10 Sue and Bill Gross School of Nursing, University of California Irvine, Irvine, California, United States of |
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Description: |
Pain is one of the most prevalent and burdensome pediatric cancer symptoms for young children and their families. A significant proportion of pain episodes are experienced in environments where management options are limited, including at home. Digital innovations such as apps may have positive impacts on pain outcomes for young children in these environments. Our overall aim is to co-design such an app and the objective of this study was to explore the perceptions of children's parents about app utility, needed system features, and challenges. We recruited parents of young children with cancer and multidisciplinary pediatric oncology clinicians from two pediatric cancer care centers to participate in audio-recorded, semi-structured, co-design interviews. We conducted interviews structured around technology acceptance and family caregiving theories until data saturation was reached. Audio-recordings were then transcribed, coded, and analyzed using thematic analysis. Forty-two participants took part in the process. Participants endorsed the concept of an app as a useful, safe, and convenient way to engage caregivers in managing their young child's pain. Overall, the app was valued as a means to provide real-time, multimodal informational and procedural pain support to parents, while also reducing the emotional burden of pain care. Recommendations for intervention design included accessibility-focused features, comprehensive symptom tracking, and embedded scientific- and clinically-sound symptom assessments and management advice. Predicted challenges to app use included the workload burden it may place on parents and clinicians. The insights gathered will inform the design principles of our future childhood cancer pain digital research. |



