Author(s): Jibb LA; Liu W; Stinson JN; Nathan PC; Chartrand J; Alberts NM; Hashemi E; Masama T; Pease HG; Torres LB; Cortes HG; Kuczynski S; Liu S; La H; Fortier MA;

Young children receiving outpatient cancer care are vulnerable to undermanaged pain. App-based solutions that provide pain treatment advice to parents in real-time and in all environments may improve access to quality pain care. We used a parent co-design approach involving iterative rounds of us ...

Article GUID: 39473834

Author(s): Pizzo A; Leisenring WM; Stratton KL; Lamoureux É; Flynn JS; Alschuler K; Krull KR; Jibb LA; Nathan PC; Olgin JE; Stinson JN; Armstrong GT; Alberts NM;

Importance: Fear of cancer recurrence is common among survivors of adult-onset cancer and associated with increased distress, functional impairment, and health care utilization. However, little is known about the prevalence and risk factors of fear of cancer recurrence among adult survivors of ch ...

Article GUID: 39361286

Author(s): Kepper MM; Fowler LA; Kusters IS; Davis JW; Baqer M; Sagui-Henson S; Xiao Y; Tarfa A; Yi JC; Gibson B; Heron KE; Alberts NM; Burgermaster M; Njie-Carr VP; Klesges LM;

The potential and threat of digital tools to achieve health equity has been highlighted for over a decade, but the success of achieving equitable access to health technologies remains challenging. Our paper addresses renewed concerns regarding equity in digital health access that were deepened du ...

Article GUID: 39088246

Author(s): Alberts NM; Leisenring W; Whitton J; Stratton K; Jibb L; Flynn J; Pizzo A; Brinkman TM; Birnie K; Gibson TM; McDonald A; Ford J; Olgin JE; Nathan PC; Stinson JN; Armstrong GT;

Although survivors of childhood cancer are at an increased risk, little is known about the prevalence of chronic pain, associated interference, and daily pain experiences. Survivors (N = 233; mean age = 40.8 years, range 22-64 years; mean time since diagnosis = 32.7 years) from the Childhood Canc ...

Article GUID: 38981063

Author(s): Fairbank EJ; Borenstein-Laurie J; Alberts NM; Wrosch C;

Objective: High levels of optimism (and low levels of pessimism) are associated with improved physical health in adults. However, relatively less is known about these relations in youth. The present study aimed to review the literature investigating optimism, pessimism, and physical health in children and adolescents from populations with and without heal ...

Article GUID: 38879445

Author(s): Gagnon MM; Brilz AR; Alberts NM; Gordon JL; Risling TL; Stinson JN;

Background: Digital interventions are increasingly popular for the provision of nonpharmacological pain interventions, but few exist for adolescents with menstrual pain. User-centered design involves incorporating users across phases of digital health intervention design, development, and implementation and leads to improved user engagement and outcomes. ...

Article GUID: 38587886

Author(s): Jibb LA; Sivaratnam S; Hashemi E; Chu CH; Nathan PC; Chartrand J; Alberts NM; Masama T; Pease HG; Torres LB; Cortes HG; Zworth M; Kuczynski S; Fortier MA;

Pain is one of the most prevalent and burdensome pediatric cancer symptoms for young children and their families. A significant proportion of pain episodes are experienced in environments where management options are limited, including at home. Digital innovations such as apps may have positive i ...

Article GUID: 38019890

Author(s): Alberts NM; Gilbert A; Kang G; Okhomina VI; Flynn JS; Hodges J; Hankins JS; Klosky JL;

Pain is a primary symptom of sickle cell disease (SCD) and is often severe and chronic. To treat SCD-related pain, proper assessment of SCD pain among youth, including the degree of concordance or agreement between youth and caregiver reports of pain, is essential but has not yet been adequately evaluated. In this study, 525 youth with SCD and their paren ...

Article GUID: 37878652

Author(s): Hankins JS; Brambilla D; Potter MB; Kutlar A; Gibson RW; King AA; Baumann AA; Melvin CL; Gordeuk VR; Hsu LL; Nwosu C; Porter JS; Alberts NM; Badawy SM; Simon J; Glassberg J; Lottenberg R; DiMartino L; Jacobs S; Fernandez ME; Bosworth H; ...

Hydroxyurea reduces sickle cell disease (SCD) complications, but medication adherence is low. We tested two mobile health (mHealth) interventions targeting determinants of low adherence among patients (InCharge Health) and low prescribing among providers (HU Toolbox) in a multi-center non-randomi ...

Article GUID: 37738155

Author(s): Pizzo A; Porter JS; Carroll Y; Burcheri A; Smeltzer MP; Beestrum M; Nwosu C; Badawy SM; Hankins JS; Klesges LM; Alberts NM;

Sickle cell disease (SCD) is an inherited red blood cell disorder associated with frequent painful events and organ damage. Hydroxyurea (HU) is the recommended evidence-based treatment of SCD. However, among patients eligible for HU, prescription rates are low. Utilizing a scoping review approach ...

Article GUID: 37691131

Author(s): Gagnon MM; Moussaoui D; Gordon JL; Alberts NM; Grover SR;

No abstract

Article GUID: 37058692